International Rare Disease Day 2011

Today is International Rare Disease Day 2011.  You can read more about it, here: Rare Disease Day 2011.

Since Essential Thrombocythemia is a rare disease, I decided to make a short video about our disease, and also to urge people to be more aware of their health.

So to all my ET and MPN friends, ‘Happy Rare Disease Day’! I know, that sounds a little funny, but I am thankful for the friends that I have made though this blog and through support groups and other MPN groups. Our disease may be rare, but it’s good to know that people as good as all of you aren’t!

International Rare Disease Day 2011 Video


~ by julie70 on February 28, 2011.

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