2009 MPD Patient Symposium

On November 4th, 2009, the MPD Foundation co-hosted the 5th Annual MPD Patient Symposium in New York.  This symposium featured guest speakers from the most prestigious cancer centers around the world.  They spoke about the Myeloproliferative Disorders, including Essential Thrombocythemia, and also had a question and answer session.  This was an important and highly educational event for patients and professionals in the field.

Personally, I would have loved to have been able to attend.  However, attending a day long event halfway across the country was not within my budget.  I was surprised and thrilled to learn that Incyte recorded the event, and hosted a webcast for free.

This webcast is available for viewing at http://www.vodium.com/login.asp?lib=pn100788.

You do have to register to view the webcast, but it is super easy to do so, and your information will not be shared.  Once logged in, you will see that the webcast has been broken down into three parts.  There is a Table of Contents listed for each part, so you know what you will be viewing.  Then simply choose which of the three parts you would like to view, based on the contents.  The table of contents will also give you an idea of where to fast forward to within each part, if you choose to skip over some of the webcast.

This webcast is extremely informative.  Yes, it is long, and not all of it is solely about ET.  PV and PMF are also discussed.  However, so many questions are answered, and new insight is given to the future of ET medicine and treatment.  You will also learn how ET, PV and PMF are related.  It is definitely worth the time to check it out :).

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~ by julie70 on February 8, 2010.

2 Responses to “2009 MPD Patient Symposium”

  1. hi…my name is cherise and i have a daughter with et…i have many therories about this illness…we had the silver fillings removed from our 8yr olds mouth and currently have her on vitamins…her platlets are the lowest they have ever been….love to chat with you if you are being cripled with this diagnoses

    • Hi Cherise,
      Wow! Is it your 8 year old who has ET? That is so young! I am very curious to hear more about her situation and how she was diagnosed.

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