Helpful Links

I mentioned a few links in my last post, but I would like to expand on that.  I will try to categorize them to highlight their area of usefulness.  Please keep in mind, these are certainly not the only places that offer great information or assistance.  This is simply a list of links that I have personally found helpful and would like to share.  If anyone has a link they think would be useful as well, please let me know and I will add it.

Facts about Essential Thrombocythemia:

MPD Foundation

MPD Info

MPD Support   (Thank you, Andy!)

National Cancer Institute

The Mayo Clinic

University of Maryland – MPD’s

Rare Diseases – Essential Thrombocythemia

Leukemia-Lymphoma Society  (Link to a great PDF file.  Thanks, Dee!)

Videos:

Mayo Clinic Video

2009 MPD Patient Symposium

2010 San Diego MPD Symposium

Support:

MPD Support Group Directory

MPD Support

ET Forum  (this is the most helpful online support forum that I have found yet, is full of wonderful people and is pretty active)

There are also several discussion groups on Yahoo Groups, such as supportET and ETsupport, as well as groups on Facebook such as Essential Thrombocythemia and MPD – Myeloproliferative Disorders.  These are great places to talk to other patients of ET and share your experiences and support.  I would love to see more people joining these groups and helping them to be successful.

Nutrition:

American Cancer Society

University of Maryland – Nutrition, Supplements and Herbs  (you will need to scroll down a little to the appropriate sections)


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~ by julie70 on January 6, 2009.

2 Responses to “Helpful Links”

  1. Hi Julie- Great site! I wanted to mention that you may wish to include a link to the leukemia and lymphoma society’s description of ET— (it’s a PDF file, but it’s a really great resource).

    Good luck with your new forum =)

    Dee C.

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